Medicaid Waivers Support Independent Living for Disabled Americans

Why it matters locally: Medicaid waivers are a critical component of Utah's healthcare system, providing essential services that allow thousands of disabled Utahns to live independently in their communities rather than in institutions. Changes to federal funding or regulations around these waivers could directly impact the availability and scope of these services across the state.

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Rebecca Anger, 57, has received personal care services through Medicaid waivers since 1989. These services enable her to live in her own home in Arizona. Anger became paralyzed following an accident when she was seven years old. She lives independently; her closest family member resides approximately 100 miles away. Micaela, one of Anger's attendants, has worked with her for seven years. Anger stated, "She knows what I need before I need it, and that’s what makes for a good caregiver." Anger reported, “I will lose my life, plain and simple, if I lose my care.” Anger earned a master's degree in public health. She worked for the state health department and advised state officials on disability policy. She also served on local and state boards, advocating for disabled Americans while managing her own care. Anger participates in adaptive sports, including skiing and kayaking.